RESOURCES

Clinical Practice Guidelines in Kidney Disease

• Caring for Australians with Renal Impairment (CARI)
  Clinical Practice Guidelines
• European Best Practice Guidelines
• National Kidney Foundation-KDOQI Clinical Practice Guidelines
• UK Renal Association Clinical Practice Guidelines
• Canadian Nephrology Professional Practice Guidelines

CKD-related Clinical Practice Guidelines

• Radiologic investigation of causes of renal failure.
  A series of updated (2005) recommendations based on analysis of the current literature and expert panel consensus.
• Clinical practice guideline on shared decision-making in the appropriate initiation of and withdrawal from dialysis.
  Guidelines developed in 2000 by the American Society of Nephrology - Professional Association and the Renal Physicians Association and endorsed by two patients associations and other stockholders.
• Chronic kidney disease (non-dialysis) medical nutrition therapy protocol.
  Key recommendations released in 2002 by the American Dietetic Association
• Guidelines for the management of chronic kidney disease in HIV-infected patients: recommendations of the HIV Medicine Association of the Infectious Diseases Society of America.
• Good practice guidelines for renal dialysis/transplantation units:
  prevention and control of blood-borne virus infection
• Published in 2002 by the Department of Health of England

Standards for Quality of Care in Patients with Kidney Disease:

CMS – Clinical Performance Measures (CPM) Project

Section 4558 (b) of the Balanced Budget Act (BBA) requires CMS to develop and implement by January 1, 2000, a method to measure and report the quality of renal dialysis services provided under the Medicare program. To implement this legislation, CMS decided to fund the development of CPMs based on the National Kidney Foundation’s Dialysis Outcome Quality Initiative (DOQI) Clinical Practice Guidelines.

CMS - Clinical Performance Measures Project - Overview

Department of Health of England

The National Service Framework sets standards and identifies markers of good practice which will help the NHS and its partners manage demand, increase fairness of access and improve choice and quality in dialysis and kidney transplant services. The National Services Framework for Renal Services include:
Part 1: Dialysis and Transplantation
Part 2: Chronic kidney disease, acute renal failure, and end of life care

National Health Service - Quality Improvement Scotland (NHS QIS)

The role of NHS QIS is to lead on improving quality of care and treatment delivered by the health service. Their five key functions are: 1) provide clear advice and guidance on effective clinical practice, 2) set clinical and non-clinical standards of care, 3) review and monitor the performance of NHS services, 4) support NHS staff in improving services, and 5) promote patient safety and implementation of clinical governance

NHS QIS Clinical Standards for Adult Renal Services

Guideline Resources

• Guidelines International Network
• National Guideline Clearinghouse
• National Health and Nutrition Examination Survey
• National Institute for Health and Clinical Excellence
• Ontario Medical Association - Guidelines Advisory Committee
• Canadian Institute for Clinical Evaluative Sciences
• Scottish Intercollegiate Guidelines Network (SIGN)

Kidney Disease Databases:

USRDS

The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States. The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in conjunction with the Centers for Medicare & Medicaid Services (CMS, formerly HCFA). USRDS staff collaborates with members of CMS, the United Network for Organ Sharing (UNOS), and the ESRD networks, sharing datasets and actively working to improve the accuracy of ESRD patient information.

DOPPS

The Dialysis Outcomes and Practice Patterns Study (DOPPS) is an on-going observational study of hemodialysis patients in twelve countries seeking to identify dialysis practices that contribute to improved mortality rates, hospitalization rates, health related quality of life, and vascular access outcomes. The DOPPS is coordinated by the Arbor Research Collaborative for Health (ARCH). ARCH is a non-profit organization, located in Ann Arbor, Michigan, focused on conducting health-outcomes research utilizing a multidisciplinary approach with expertise in epidemiology, biostatistics, medicine, and health economics.

Click here for the complete DOPPS Powerpoint File.
'Evaluating the percent of patients meeting NKF/KDOQI Guidelines.'

EUToX Uremic Toxin Database

The European Uremic toxins database (EUTox-db) is a initiative of the European Work Group on Uremic toxins (EUTox) of the European Society for Artificial Organs (ESAO). This database is a web-based, interactive tool both providing and collecting information on biological significance of uremic toxins. The mission of EUTox is to prevent renal and vascular disease by:

• defining biomarkers that would allow early diagnosis of disease onset,
• identifying compounds that delay or halt disease progression,
• improving therapeutic strategies aimed at prevention of disease and disease progression.